Make a Promise to Yourself

By Becca Lory, CAS When I was given the opportunity to write this blog, I thought to myself, “great, another blog by another adult with autism.” With so many fabulous blogs out there by autistics, why would anyone read mine? What would make this blog different? What would make people want to read my posts and, moreover, what would keep me writing them? I decided I would follow my inner author and wait for the writing gods to send me a muse. And man, did the idea come. One of the things I have worked on intently since my diagnosis five … [Read more...]

How Can You Help with One of Our Comorbid Conditions?

By Rochelle Johnson Everything I do—every thought, feeling, action, compulsion, achievement, and failure—comes from an autistic lens. Why? Because it’s who I am. There are many things I can share from the lens of autism but today I want to focus on comorbid conditions. Comorbidity in terms of being autistic means that we can have disorders that co-occur with our autism. For some it’s an intellectual disability, significant speech articulation issues, or mobility issues. But by far the most common, as far as I understand it, is that of mood … [Read more...]

What Do Bees Have to Do with Autism?

By Megan Amodeo Bees are really extraordinary creatures. Sure they can sting you, but they also make honey. They buzz around pollinating flowers and fruits with tiny wings that shouldn't be able to support their body weight. They shouldn't be able to fly, but they do it every day. Bees also live in colonies. They work together to achieve a common goal. You might be thinking this seems like a bunch of random facts about bees. Shouldn't I be telling you something about autism? Funny you should ask. With spring hopefully just around the corner, … [Read more...]

Why Autism Gives Me the Strength to Fly!

By Megan Amodeo In just a few short days I will turn the chapter and enter year number 44 of my life. It has been 8 years since two of my three children were diagnosed with autism spectrum disorders. It has been 8 years since I was also deemed as an autistic mom, wife and woman. I started to think about all the things in my life that have changed or been altered by our autism diagnoses. I honestly felt a huge sense of relief the moment my daughters were diagnosed. That may sound strange to typical parents, but I have never been typical. I … [Read more...]

My Life-changing Second Awakening of Truth

By Rochelle Johnson The air around me is suddenly crisp and clear and real and natural. I can taste it anew. Taste it in a way I don’t think I ever have before. Every drop of morning dew and a blade of grass, each little squawk of birdsong, is fresh and new and more real than it has ever been. I’ve undergone an awakening. An awakening of sorts that is so incredibly momentous that it is so almost impossible to put it into words. And yet, there is a word for it, there is even a word for the time of life I am in, there is even a sentence to … [Read more...]

Dealing with Failure is a Learnable Life Skill

By Megan Amodeo Life can be beautiful and wonderful. Life can also be disappointing and frustrating. Many of us on the spectrum see life as black and white or right and wrong. There often isn't any room for those in between ‘gray’ areas of life. You either make the baseball team or you don't. You get a good grade on your term paper or you don't. These seem like clear cut outcomes. Unfortunately, everything in life is not always so literal. Even when things are very black and white, there is always a little bit of gray. Gray areas … [Read more...]

Finding Peace and Calm in a ‘Going Out’ Bag

By Megan Amodeo We all have certain objects, sayings, foods and routines that make us feel comfortable…our creature comforts. You may enjoy a warm blanket, a pair of fuzzy slippers and a good cup of hot cocoa on a winter day. A long hot bubble bath, with no kiddos banging on the door, is a necessary creature comfort for many of us moms. Creature comforts bring to mind favorite foods. I love a cup of chili on a cold rainy day. I'm sure we can all make a list of the things that make us feel happy and comfortable. My family goes on one … [Read more...]

Finding Friendship in the Flub-ups

By Lydia Wayman Every year, I look forward to the OCALICON autism conference in Ohio. The three days are the one time I get to be with my autistic friends who share my passion for advocating. It's an absolute whirlwind from start to finish. Teachers, therapists, and family members come to OCALICON to learn better ways to improve our lives. There are about a dozen autistic adults who attend, and since most of us are good friends, we tend to team up for presentations in different groupings every year. This year was extra special. I … [Read more...]

Why I Stopped Worrying About After-School Activities

By Megan Amodeo When we first set eyes on our tiny little bundles, boy or girl, we have visions of great athletes, scientists and presidential aspirations. The reality is, our children become who they become. We parents can only do so much to shape our children but ultimately, they becomes their own unique selves. My youngest daughter started middle school this year. Of course I had the same concerns that every parent has as their child enters a new stage in life. I worried about her classes, her locker, her friends…a laundry list of … [Read more...]

What Worries You When Your Child Reaches a New Milestone?

Parents often ask with concern why when their child has made a gain of some kind in development do they seem to reverse in others? As an Autistic I can tell you that many times when reaching a new milestone, we may revert to a previous special interest or sensory seeking behaviour for comfort and reassurance. There's nothing wrong with that. What we tend to notice more is the regression Autistic's display if there has been a traumatic experience. But any progress is still a change even if it is good, so a step back in another area … [Read more...]