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#AskingAutistics: What’s One Thing You Wish You Would Have Known?

January 8, 2019 By Jodi Murphy Leave a Comment

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Symbol of neurodiversity brain on left and image of Christa Holmans, Neurodiversity Rebel on right

By Christa Holmans, Neurodivergent Rebel

I found out that I was autistic at the age of twenty-nine. The Psychologist who diagnosed me recommended I read the works of autistic authors and seek out other autistic adults in order to help me to better understand autism and how it related to myself.

She sent me home with a few book titles, which I quickly devoured. I found comfort in the words and stories of the autistic authors diagnosed before me. Suddenly many things in my life began to make sense, as I started to review my stories through the newly discovered lens of autism.

The information bomb shook my personal worldview.

For much of my life, I had felt strange and alone. For the first time ever, much of what I’d thought was wired undesirable about myself began to feel acceptable and even ‘normal’. Much like when the ugly duckling realized that it was, in fact, a swan and not a duck at all. Finally, I was free.

When my doctor’s reading recommendations ran out, I turned to the internet. Unfortunately, the resources Google brought me were far less helpful, and often problematic. Most of the headlines were gloom and doom. There had to be a better place to connect and learn from others like me.

When I first hopped onto Twitter in the Fall of 2016, after my recent diagnosis I was searching, seeking information, digging for understanding, and hoping to decode what autism really meant to me.

At the beginning of my autistic discovery journey, I was a novice with many questions, so I turned to the internet and eventually started the #AskingAutistics tag, as a way to help myself and others to get all of their autism questions answered.

Of all the sources for autism information in the world, I’ve found that #ActuallyAutistic voices are my favorite.

These are the voices that should be first when people seek to learn about autism, but they are often the hardest voices to find. They helped me when I was first unpacking my own autism diagnosis and continue to help those who are newly discovering their autistic nature.

I hope this month’s question is for those of you who are still searching and learning:

Neurodivergent Rebel Asking Autistics Twitter Question for January

#AskingAutistics: What is the one thing you wish you had known when you first discovered you were autistic?

Here are some of the responses that stood out:


I wish I had known other autistic people.

Sarah Akin @E_c_h_o


I wish I had known more about social masking. I had gotten to the point where I didn’t even realize I was masking, and it was damaging my mental health (i.e. trying to ‘get over it’ when I was experiencing sensory overload). Now I just shamelessly put on my headphones when I am.

Jordanne Brisby @jordannebris


That ‘experts’ in the Mental Health fields get so much wrong. It’s such a relief to share experiences with autistic people and know I am similar to them despite what the experts say. Especially about empathy and communication.

@AspieOu


That I was autistic, and the words: “I’m overstimulated right now” with a solution (can you lower your voice? can I wait in the car?). I didn’t realize before that I had agency to do something when I felt overstimmed.

Meg Eden @ConfusedNarwhal


I would have realized I was autistic sooner, except that the descriptions of autism are from an external, NT point of view that describes observed behaviors, which did not match my internal experience.

Amelia Rose @AmeliaRoseWrite


Executive Function issues. I knew about the social stuff, and had learned a fair bit about the sensory stuff (and my parents knew and understood my more obvious sensory issues), but I had no idea about the #ExecutiveDysfunction or how much it affected.

#ActuallyAutisticTrudy Goold (tagÂûght) @tagoold


I didn’t find out I was Autistic until my late 30s, and the hardest part was learning about masking – or rather – learning how to unmask and unlearn a lot of the things I did to hide my symptoms that had become unhealthy habits and created lots of stress and anxiety in my life.

@nik_mohilchock


That I would like myself one day.

Becca Lory Hector @beccaloryCAS


That we mask for other people’s benefit not our own. I thought for so long that other people feeling comfortable around me benefitted me despite having to mask and it literally doesn’t. If they don’t like me as I am they don’t like me and I won’t waste my time :p

AJ Vassie @aj_oxox


Read About Christa

If you liked this post, you may also like:

  • Books By Autistic Authors
  • Why I’m Leaning In to Being Brave
  • Why I Don’t Need Your ‘Sorry’ About Our Autism Spectrum Disorder
  • How Will You Feel After the Diagnosis?
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Filed Under: Blog Haps, Neurodivergent Rebel, Penfriend Project Autism Columns Tagged With: #ActuallyAutistic, #AskingAutistics, neurodiversity

About Jodi Murphy

Jodi Murphy is the founder of Geek Club Books, a registered nonprofit committed to creating a world where autistic individuals are fully accepted, valued and have a voice. Her priority is bringing autistic individuals creative and leadership opportunities that are meaningful, empowering and support their advocacy. She works with a creative autistic team to produce pop culture-based autism awareness education that is innovative, engaging, positive and opens hearts and minds to a new way of thinking about autism. Sign up for Geek Club Books mailing list for free apps, resource guides, curriculum, audio stories and more: https://geekclubbooks.com/autism-bundle.

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